Ghostwriter
Somehow life got very complicated. Now my new mantra is ”it is simply life”. This weekend seemed very long. We wanted to go out and watch the Kentucky Derby on the big screen as we have done for many years. With my brother being so ill we cancelled our plans. He got very angry and called to rebook. He was certain all would be well.
We went and he was wrong. All was not well. We got the call that he was back in the hospital with a very high fever and didn’t know anyone. He was then moved to Intensive Care. So of course we went to plan B and came home.
By the time we got home, he at least knew who we were, and he is still in ICU trying to get something worked out so he can get better and come home. He is so angry. He has one wish “I don’t want to die in a hospital. I want to pass at home.” We try and have hospice at home, but the rules with hospice (at least in this state) is that the only way they don’t have to alert for an ambulance is that if his heart stops and he has a dot not resuscitate. However the problem is not his heart so the ambulance is called. We don’t want him to pass away at all and still want to respect all of his choices. This is a balancing act and I don’t feel like I am keeping all the “balls in the error.”
Life becomes very complicated.
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Question of
Does your life often seem complicated?
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Yes
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No
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Question of
Do you ever worry about decisions you made?
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Yes
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No
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Sometimes life can be very hard and yet we prevail with all its complications
It seems that I prefer your mantra rather than being shackled by a perspective that only sees life as complicated
Life is simple, it’s we who make it complicated.
I am so sorry. First, that you are facing this. Second, it isn’t easy.
My wife is a hospice social worker, she deals with situations like this all the time. I wish I had more than encouragement.
Being able to talk about and not with family members is a great help.
Your wife has tough job. In our state the hospice social worker has to make yearly visits for the next five years after someone passes in the home. It gets overwhelming for all involved.
In our state, she is only allowed to visit once (mandatory) and once (optional) after the patient dies.
It is a really tough ob But she loves helping those at the end of life.
Life is really simple, but we insist on making it complicated
If you don’t think that choosing where a loved one passes away when you have a choice is complicated – I don’t understand you at all. To each his own.